PET scan Feb 2014...

My husband Jim had a PET scan today. He was told last month that his NSCLC Lung Cancer had returned. This time the cancer is in his right lung. His left pneumonectomy was February 2013. We will not have the results of this PET scan or CT scan until next week. They will check the rate of growth of the "new" cancer; then they will give Jim his options so that Jim can make a new plan of action. Please keep Jim and my family in your thoughts and your prayers. 

Cancer has returned...

22Jan14: One year ago, on 22Jan13, I announced on FaceBook that Jim had cancer. Exactly one year later, I was on FaceBook once again to let friends and family know that my husband Jim’s cancer had returned.

Jim had a doctor appointment 22Jan13 and we did not receive the news we had hoped for. Jim’s bone scan was good, as expected. The CT scan showed nothing new in the brain, which is great news. The CT scan showed the previous 6mm mass in the lower right lobe is stable, unchanged, which is good because it has not changed. But, the CT scan did show a new 5mm abnormal mass in the middle lobe of the right lung. This is not good news.

The plan is to repeat the CT scan and blood work in six weeks to see the rate of change. There will also be a PET scan in six weeks because the PET will give more detailed information regarding the status of the 5mm mass in the middle lobe, and search for any other new cancers. Jim and I will meet with the oncologist after these tests to review the results and make a plan.

Jim’s attitude and spirits are both good. Of course, we are still processing the information. I’m sure we will have ups and downs. We are thankful for the good news that we received today. We will accept the bad news and deal with it head on as we explore our options. We still move forward with the phrases “it is what it is” and we will “play the cards that are dealt to us”.

We are thankful for our friends and family that has stood with us through this journey. Your love and support are very important to us.

We are thankful for those of you that follow us and give us moral support, your LIKES and words mean the world to us. This journey has been manageable because of the encouragement we have received from you.

Thank you, you know who you are… and we know who you are not. Yes, sadly, we know who who made their choice not there for Jim. 

Good news...

22Oct2013 Jim’s appt, short answer: GOOD NEWS! Long answer: My husband Jim had his consultation today regarding his Lung Cancer status. We did not receive any bad news today. Jim’s most recent CT and PET did NOT show any worrisome activity. Jim’s pericardium and pulmonary vein looked good. There is a small area on the right lung that will be closely monitored, but we are not alarmed. The doctor feels, and we agree, that they have done all the chemotherapy and radiation that they can do at this point. The doctor would not say “remission”, we did ask him directly. The doctor did say “guarded optimism”. The doctor stated directly to Jim that he “expects the cancer to come back within two years”. This timeline falls in line with the information that we received at the time of Jim’s pneumonectomy. *Stage 4 NSCLC that has invaded the heart has its own set of parameters. During this phase we will have a “wait and see policy” with Jim having serial CTs and PETs. We are pleased with this update. This news is good news.

This status post comes just nine short months (to the day!) after I announced on my facebook that Jim had cancer. It is just ten short months (to the day!) from Jim’s very first appointment that began this journey. We had no idea at that time that it was cancer. Our lives have certainly changed during 2013. 

Waiting...

My husband, Jim, is still waiting for tests and test results to see if his stage 4 lung cancer is still active. These results will let us know if the cancer treatments were successful or not. Once we have the information, Jim can make a plan and move forward. The weeks of waiting are stressful. Hopefully, we will have information by the end of this month. 

No information...

My husband, Jim, has now completed his radiation regime for his stage 4 lung cancer NSCLC. The radiation center gave Jim a cheesy diploma (lol). Jim had already completed his four cycles of chemotherapy. Jim also completed an additional cycle of chemotherapy with a different drug.

Jim had his appointment with his oncologist. We learned… nothing. Yes your read that correctly, we learned nothing. Jim was told to “come back in five weeks” and “we’ll see how you’re doing”.

I think it is time for a second opinion. I do not like the vagueness and allusiveness of this doctor. The doctor tends to practice what I call “defensive doctoring”, meaning the tests, procedures, and health plan are all geared towards a CYA approach of doctoring and do not appear to be geared towards Jim’s unique cancer and unique situation. I was disappointed with the “nothing” report that we received.

Jim has consulted with another doctor to request that Jim’s CTs and PETs are reviewed and explained in full. Jim had asked his own oncologist but the oncologist never complied with Jim's request. As you may recall Jim had a complete left pneumonectomy. My specific concern is that Jim had a nodule in the right lung, and now they are not commenting about that nodule. If it is gone, that is actually a bad thing (not a good thing); because that means that there was actually cancer in the right lung. If the nodule is gone, that means that the chemo has worked to reduce the nodule, but the simple fact that the nodule was there at all means that the cancer has spread to other organs (the right lung). If the nodule is still there, that is actually a good thing because that means it is probably a fungus which is common in our area of the Midwest. 

On a more positive note, I suppose that a neutral "nothing" report is better than a negative report. 

Jim remains extremely nauseated. Jim remains extremely fatigued. Jim is doing his very best to manage his multiple symptoms, but it is a daily challenge. As I have said many times, and will continue to say: Play the cards that are dealt; and it is what it is.

Waiting room...

I am getting pretty efficient at waiting. Since my husband Jim's lung cancer diagnoses I have spent a lot of time waiting; waiting at doctor appointments, waiting at surgery, waiting at hospitals, waiting for phone calls, waiting on results, waiting for Jim, lots and lots of waiting. I spend lots of time thinking, time praying, time reading, and time sewing.

I am working on a hexagon quilt for Jim. I have been able to work on this project quite a bit recently. I'm glad that I have something to fill the time, but saddened that Jim has so many appointments. The quilt is hand-stitched so it is easy to start and stop at anytime. I think Jim will like it. I hope he will appreciate it.

Today I am waiting yet again. Jim is having his "powerport" implanted today so that he can start his chemo soon. This port is state of the art, titanium, and will be very beneficial during his chemotherapy treatments.

So, once again I will pick up the needle and sew.

And we wait...

My husband, Jim, was recently diagnosed with lung cancer. Jim had an appointment with a surgeon, but no surgery date has been set for his lung removal because that surgeon was called out of town. Later this week Jim will have another appointment with another surgeon. The educated guess is that the surgery will be within ten days. We are both relieved and stressed with this information; glad that the cancer will be removed from his body, but distressed that he has to have such an invasive surgery. Cancer is never good, but we are blessed that Jim’s cancer is no worse than it is. There are so many families that are suffering with so much more. We both appreciate your encouraging words and your prayers. Two phrases often repeated in our home: “It is what it is.” and “We’ll play the cards that are dealt to us.” 

PET scan completed…

My husband, Jim, did fine during his PET scan Thursday 24Jan13, meaning: he was not claustrophobic, which had been a concern; and he did not cough, which was a blessing. Now we are waiting on the results. Please pray that there is nothing unexpected.

The waiting is stressful. The unknown scares me more than the knowing. Once we do know the results of the PET scan, we can make a plan and move forward. Once we have a plan and goal, we can begin to reach for that goal. Right now, I feel stalled at the starting line. 

Jim wore one of his favorite shirts for his body scan. Jim's shirt reads: I'm not trying to be difficult. It comes naturally! 

Today is the day...

Today is the day of Jim's first procedure (see previous post for details). It's not been a pleasant day so far. I'm sick with a stomach bug; son Matt has a bad cough. Luckily son Dan is visiting from England and he is looking after the kids.

11:15a We have checked in at the hospital and we are waiting in the waiting room. Jim is scheduled to begin at 1p. Jim is in good spirits despite the uncertainty. I wish that I felt better but it is what it is. I will try to update throughout the day, as long as I have power and Internet.

11:20a The nurse has taken Jim back to get him prepared. I am still waiting. 11:55 I'm now waiting with Jim.

12:35p Jim was just taken back. And now I wait. My cousin is here waiting with me. My mom joined us in the waiting room a bit later. This is Jim on his way into the procedure.

1:50p It was not the post surgery news we had hoped for. It is not an infection. The doctor's best guess is a cancer of some sort. Now we wait to find out the degree of concern. They are concerned about his weight loss. Surgery was briefly discussed. We will know more in a few days. :( Jim is now in recovery, joking and cutting up. This photo is Jim in recovery. We'll be going home any minute.

3:30p. We are home now. Jim is resting. I am still trying to process all the information. We will deal with whatever is thrown at us.