Oncologist tomorrow...

We were told six weeks ago that Jim's NSCLC Lung Cancer had returned. Last week Jim had a CT and a PET scan. Tomorrow my husband Jim should receive the results of these two tests. These test results should determine the rate of growth of the new cancer spots. The PET scan should also tell us if the cancer has spread to any other parts of his body. The ROG and location will help determine what options are available to Jim.

I do not know what the news will be. I am nervous, and a bit scared. I am fearful that it will be bad results. I know that there is nothing that I can do but wait and worry. I think that I will feel more comfortable once I hear the outcome, good or bad. After we hear the conclusions, Jim and I can make a plan. No matter the results, the waiting often seems worse. It has been a very long six weeks. At least when I have a plan, I will feel like I am doing something.

Cancer has returned...

22Jan14: One year ago, on 22Jan13, I announced on FaceBook that Jim had cancer. Exactly one year later, I was on FaceBook once again to let friends and family know that my husband Jim’s cancer had returned.

Jim had a doctor appointment 22Jan13 and we did not receive the news we had hoped for. Jim’s bone scan was good, as expected. The CT scan showed nothing new in the brain, which is great news. The CT scan showed the previous 6mm mass in the lower right lobe is stable, unchanged, which is good because it has not changed. But, the CT scan did show a new 5mm abnormal mass in the middle lobe of the right lung. This is not good news.

The plan is to repeat the CT scan and blood work in six weeks to see the rate of change. There will also be a PET scan in six weeks because the PET will give more detailed information regarding the status of the 5mm mass in the middle lobe, and search for any other new cancers. Jim and I will meet with the oncologist after these tests to review the results and make a plan.

Jim’s attitude and spirits are both good. Of course, we are still processing the information. I’m sure we will have ups and downs. We are thankful for the good news that we received today. We will accept the bad news and deal with it head on as we explore our options. We still move forward with the phrases “it is what it is” and we will “play the cards that are dealt to us”.

We are thankful for our friends and family that has stood with us through this journey. Your love and support are very important to us.

We are thankful for those of you that follow us and give us moral support, your LIKES and words mean the world to us. This journey has been manageable because of the encouragement we have received from you.

Thank you, you know who you are… and we know who you are not. Yes, sadly, we know who who made their choice not there for Jim. 

No information...

My husband, Jim, has now completed his radiation regime for his stage 4 lung cancer NSCLC. The radiation center gave Jim a cheesy diploma (lol). Jim had already completed his four cycles of chemotherapy. Jim also completed an additional cycle of chemotherapy with a different drug.

Jim had his appointment with his oncologist. We learned… nothing. Yes your read that correctly, we learned nothing. Jim was told to “come back in five weeks” and “we’ll see how you’re doing”.

I think it is time for a second opinion. I do not like the vagueness and allusiveness of this doctor. The doctor tends to practice what I call “defensive doctoring”, meaning the tests, procedures, and health plan are all geared towards a CYA approach of doctoring and do not appear to be geared towards Jim’s unique cancer and unique situation. I was disappointed with the “nothing” report that we received.

Jim has consulted with another doctor to request that Jim’s CTs and PETs are reviewed and explained in full. Jim had asked his own oncologist but the oncologist never complied with Jim's request. As you may recall Jim had a complete left pneumonectomy. My specific concern is that Jim had a nodule in the right lung, and now they are not commenting about that nodule. If it is gone, that is actually a bad thing (not a good thing); because that means that there was actually cancer in the right lung. If the nodule is gone, that means that the chemo has worked to reduce the nodule, but the simple fact that the nodule was there at all means that the cancer has spread to other organs (the right lung). If the nodule is still there, that is actually a good thing because that means it is probably a fungus which is common in our area of the Midwest. 

On a more positive note, I suppose that a neutral "nothing" report is better than a negative report. 

Jim remains extremely nauseated. Jim remains extremely fatigued. Jim is doing his very best to manage his multiple symptoms, but it is a daily challenge. As I have said many times, and will continue to say: Play the cards that are dealt; and it is what it is.

Today is the day...

Today is the day of Jim's first procedure (see previous post for details). It's not been a pleasant day so far. I'm sick with a stomach bug; son Matt has a bad cough. Luckily son Dan is visiting from England and he is looking after the kids.

11:15a We have checked in at the hospital and we are waiting in the waiting room. Jim is scheduled to begin at 1p. Jim is in good spirits despite the uncertainty. I wish that I felt better but it is what it is. I will try to update throughout the day, as long as I have power and Internet.

11:20a The nurse has taken Jim back to get him prepared. I am still waiting. 11:55 I'm now waiting with Jim.

12:35p Jim was just taken back. And now I wait. My cousin is here waiting with me. My mom joined us in the waiting room a bit later. This is Jim on his way into the procedure.

1:50p It was not the post surgery news we had hoped for. It is not an infection. The doctor's best guess is a cancer of some sort. Now we wait to find out the degree of concern. They are concerned about his weight loss. Surgery was briefly discussed. We will know more in a few days. :( Jim is now in recovery, joking and cutting up. This photo is Jim in recovery. We'll be going home any minute.

3:30p. We are home now. Jim is resting. I am still trying to process all the information. We will deal with whatever is thrown at us.